American Congress of Obstetricians and Gynecologists
Women with Disabilities
Center for Research on Women with Disabilities (CROWD)
3440 Richmond Avenue, Suite B - Houston, Texas 77046
Phone: (713) 960-0505
Toll Free: 1-800-44-CROWD
Fax: (713) 961-3555
Health Promotion for Women with Disabilities Project
Villanova University - College of Nursing
800 Lancaster Ave., Villanova, PA 19085
Phone: (610) 519-4922
North Carolina Office on Disability and Health
FPG Child Development Institute,
UNC-CH, 8185, Chapel Hill, NC 27599-8185
Phone: (919) 966-0868
Fax: (919) 966-0862
Office on Women's Health
U.S. Department of Health and Human Services
Spinal Cord Injury Information Network
UAB Department of Physical Rehabilitation and Medicine
529 Spain Rehab Center
1717 6TH Ave South
Birmingham, AL 35233
The Christopher and Dana Reeve Paralysis Resource Center
Short Hills Plaza, 636 Morris Turnpike, Suite #3A, Short Hills, NJ 07078
Toll Free: 1-800-539-7309
The National Spinal Cord Injury Association
6701 Democracy Blvd., Suite 300-9, Bethesda, MD 20817
Phone: (301) 214-4006
Fax: (301) 881-9817
United Spinal Association
75-20 Astoria Blvd., Jackson Heights, NY 11370-1177
Phone: (718) 803-3782
Fax: (718) 803-0414
Videos and Publications:
A Health Handbook for Women with Disabilities
This book can help most women with disabilities around the world, better care for themselves improve their general health, their capabilities and self-reliance, and their ability to participate more effectively in their communities. It covers every imaginable topic including general health, sexuality, parenting and abuse. It can be purchased for $20 plus shipping at Hesperian's online store at http://www.hesperian.org/, by emailing firstname.lastname@example.org, or by calling 1-888-729-1796 (within the USA). Discounts are available for bulk purchases.
Health and Wellness for Women with Disabilities
Easy to understand, web–based guide informs women with disabilities about topics such as chronic conditions, health maintenance, sexually, mental health and reproductive health care. Published through the Center of Research for Women with Disabilities at Baylor College.
Let's Talk About Health: What Every Woman Should Know
A video and curriculum workbook that is designed to help women with developmental disabilities feel more prepared for pelvic and breast exams. The video takes the viewer through each exam step by step in a calm and informative manner. Heaton, C, Roberts, BS, Murphy, L, Meagher, M, Randall, D., The Arc of NJ Women's Health Project, 985 Livingston Ave, N. Brunswick, NJ 08902 (908) 246-2525
Not Just Surviving
Four women who have been living with Spinal Cord Injury for as long as 30 years discuss topics that include rehabilitation, healthcare, sexuality, parenting, menopause, and how to live day-to-day with hope. (40 minutes) Costing $149. to purchase and $60/day rental. To order contact Fanlight Productions, http://www.fanlight.com/ (800)343-5540 or email@example.com.
Post-Polio Health's Report:
Women with Polio: Menopause, Late Effects, Life Satisfaction and Emotional Distress
Reproductive Health for Women with Spinal Cord Injury:
Part I - The Gynecological Examination - 1997 (30 min)
Educates healthcare providers on how to safely and comfortably manage the annual GYN exam, breast self-exams and mammograms and menstrual management.
Part II - Pregnancy & Delivery - 2003 (32 min)
Features experiences of women with SCI who have children along with suggestions from professionals on ways to manage medical issues related to pregnancy, labor and delivery.
Producer: UAB RRTC on Secondary Complications of SCI & Office of Research Services Order from: UAB Dept of PM&R, Office of Research Services 619 19th Street South - SRC 529, Birmingham, AL 35249-7330 205-934-3283 Cost: $15 per video + $5 s/h or both videos for $25 + $5 s/h http://www.spinalcord.uab.edu/show.asp?durki=58096&site=1021&return=21811
Table Manners and Beyond
The gynecological exam for women with developmental disabilities and other functional limitations. This manual was produced under the auspices of the Women's Wellness Project, a collaborative effort between the Regional Center of the East Bay and the Women's Health Project of UCP of the Golden Gate.
The Disabled Woman's Guide to Pregnancy and Birth
Judith Rogers, OTR (Demos Publishers, 2005) (532 pages) $25 (includes shipping)
Judi Rogers, Through the Looking Glass. Pregnancy and Birthing Specialist since 1989 and recipient of the 2002 Robert Wood Johnson Community Health Leadership award http://lookingglass.org/news/rogers.php, has just revised and expanded her previous book. The Disabled Woman's Guide to Pregnancy and Birth supports the right of all women to choose motherhood, and will be useful for any physically disabled woman who desires to have a child. This comprehensive guide is based on the experiences of ninety women with disabilities who chose to have children. This book is a practical guide both for disabled women planning for pregnancy and the health professionals who work with them. The subjects covered include: an introduction to the ninety women and their specific disabilities; the decision to have a baby; parenting with a disability; emotional concerns of the mother, family and friends; nutrition and exercise in pregnancy; a look at each trimester; labor and delivery; caesarean delivery; the postpartum period; and breast-feeding. A list of references and a glossary will assist the reader in obtaining additional information and understanding medical terminology.
To order, contact Through the Looking Glass, by phone (1-800-644-2666) or go to their website at http://www.lookingglass.org/
The Gyn Exam
A video and handbook with teacher’s guides and photos. The video takes the viewer through a breast and pelvic exam step-by-step.
Stanfield & Co., PO Box 1983, Santa Monica, CA 90406